Welcome to
A Butterfly for Change

A Butterfly for Change is a 501(c)(3) whose mission is to help families with children with Leukodystrophies access the medical care they need by providing financial assistance

Why Butterfly?

In nature, the butterfly represents hope, transformation, and the beautiful journey of change. Just as a butterfly emerges from its cocoon, we at “A Butterfly for Change” aim to guide families through the challenging journey of Leukodystrophies. Together, with your help, we can give these families a brighter tomorrow.

Our Mission

A Butterfly for Change is a 501(c)(3) nonprofit organization committed to ensuring that families with children diagnosed with Leukodystrophies aren’t hindered by financial barriers when seeking crucial medical care. Our mission is to flutter towards a world where every child has an equal chance at life and treatment, regardless of their financial circumstances.

What are Leukodystrophies?

Leukodystrophies, a group of rare genetic disorders, have left numerous families grappling with the weight of diagnosis, treatment, and the challenges that come along. These disorders primarily target the brain’s white matter, impacting the nerve fibers’ myelin sheath, which is crucial for effective nerve signal transmission.

The Many Faces of Leukodystrophies

While the term ‘Leukodystrophy’ serves as an umbrella for these conditions, it’s important to understand that there are multiple types, each stemming from different genetic causes and manifesting through varied clinical symptoms. Some families witness the onset of symptoms during their child’s infancy, while others may encounter them later in life.

Symptoms can range from muscle weakness, declining motor skills, and behavioral changes to more severe manifestations like cognitive function losses. The journey with Leukodystrophies is multifaceted, with every family having its unique challenges and stories of resilience.

The Gap in Specialized Care

One of the pressing challenges faced by families navigating the world of Leukodystrophies is the glaring lack of specialized care. Given the rarity of these disorders, there’s a significant gap in both understanding and professional expertise. Families often find themselves on exhaustive medical pilgrimages, seeking professionals familiar with their specific type of Leukodystrophy.

They Need Your Help!

Even the smallest donation can set big changes in motion. Your support can help lay the foundation for a future where no child is denied medical care due to financial constraints.